Josie Godfrey

Senior Adviser

Josie has extensive experience in market access for rare diseases. She led the establishment of the Highly Specialised Technologies programme at NICE in the UK, including the introduction of a process for Managed Access Agreements to facilitate access to treatments for very rare diseases. She is also currently leading Duchenne UK’s Project HERCULES and fostering international multi-stakeholder collaboration to develop evidence and support tools for HTA for new treatments for Duchenne Muscular Dystrophy.